3 € Pharming schreef op 22 december 2018 18:55:
Prayers needed and greatly appreciated. Today I get my first dose of Ruconest for another acquired autoimmune process I’ve developed called acquired angioedema. It causes malfunction in the complement system and crosses into essentially causing multiple autoimmune diseases ??? sooooo here we are. This is a last ditch effort, our Hail Mary pass. I see the big-uh-muh-shit smarty doc at University of Colorado on the 26th who has twice now discussed the possibility of a bone marrow transplant. The mortality rate in the trials is less than ideal so we are hoping the addition of Ruconest will show significant improvement in everything like we had hoped for Soliris but ended up only helping MG (but greatly!). Here we go.
Bovenstaande bericht had ik gepost in November heb nu terugkoppeling gehad dat ze nog steed Ruconest gebruikt !